The South Dakota Department of Health, Office of Child and Family Services is pleased to announce the Newborn Screening Program will be expanding its service to include Long Term Follow Up for diagnosed disorders identified by newborn screening bloodspot testing. This expanded service will be located at Sanford Children’s Specialty Clinic in Sioux Falls, SD.
The Sanford long term follow up team will provide care coordination, insight, primary care and specialist communication, support, and referral services to various state and private programs to the newborn screening patients and parents.
The children covered by this service must be a resident of South Dakota and have a disorder found on our screening panel. The program will assist families across all medical institutions and is not limited to Sanford Health System.
Beginning August 1, 2023, the Sanford long term follow up program will begin reaching out to physicians and families to enroll our smallest residents into the program. There is no cost to families for this program.
More information about Newborn Screening and the disorders included on the newborn screening panel can be found here. Additional questions about Newborn Screening and the Long-Term Follow-up program please contact Bernadette Boes, RN, Newborn Screening Program Coordination at Bernadette.boes@state.sd.us.
